Find comfort
“Being the parent of a rare kiddo does not make you superhuman but it can make you recognise your superpowers.”
— Katie, A Very Rare Adventure
LINKS TO our favorite special needs parents
a very rare adventure
Located in Switzerland, Katie and her very rare son Kasper share their unique journey.
amanda griffith atkins
Follow writer Amanda Atkins to find validation for parents of medically complex children.
Once upon a gene
Follow rare disease mother Effie Parks as she shares her own personal caregiving story.
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Alone, we can do so little. Together, We can do so much.
Helen Keller